Childhood Cancer Resources

TeamConnor has compiled a variety of resources that you may find helpful during a child’s journey through cancer. We will continue to update with new information so check back regularly for new information.

Books for Adults

Hope Transformed: A Battle Strategy for Surviving Life’s Greatest Trials by Joy Cruse

For five years, Joy and Tait Cruse walked closely with God while their four-year-old son, Connor, battled stage-IV cancer. Throughout this time, their primary focus was to navigate through the toughest battle of their lives without losing their hope in Christ. Hope Transformed offers a simple guide in devotional/self-help format for readers to work through their own battles, while garnering strength from God. Many authors offer hope for readers during the battle.  Hope Transformed also speaks to readers who, by not having their desires realized, feel defeated and lost. In the final chapters of the book, they use their post-battle wisdom to answer the compelling question, Where do you go when God says “no”?  The focus of this book is not about the loss of Connor. Connor’s life was the stimulus to finding faith and hope in their battle and their loss.  At first, their hope was in Connor’s healing, but ultimately their hope was found in Christ.

What Cancer Cannot Do: Stories of Courage by Anonymous

Cancer is so limited…. It cannot cripple life, it cannot shatter hope, it cannot corrode faith, it cannot … Filled with stories of courage for anyone dealing with cancer, this book combines uplifting Scriptures from the NIV, inspirational quotes, and encouraging stories from both male and female cancer survivors.

Fighting Chance: Journeys Through Childhood Cancer by Harry Connolly

Containing 200 images, this book follows courageous patients, strong families, and brilliant caregivers battling cancer in and out of the hospital. Photographed over the course of three years, it includes contributions from best-selling author Tom Clancy and Dr. Curt Civin, Director of Johns Hopkins Hospital’s Pediatric Oncology Unit. Other insight comes from nurses, parents, siblings, and the children themselves. Not only is the book a learning tool, it attests to the fact that today more and more children survive their cancer.

Childhood Cancer Survivors: A Practical Guide to Your Future by Nancy Keene

More than 250,000 children, teens, and adults are survivors of childhood cancer. The present high rate of cure for childhood cancer is a cause for celebration–children and their families faced adversity and triumphed. The surgery, radiation, and chemotherapy used to cure children can affect growing bodies and developing minds. If young people know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop.

Childhood Cancer Survivors charts the territory of long-term survivorship:

  • Emotional aspects of surviving cancer
  • Challenges for relationships; fertility concerns
  • Follow-up schedules for health monitoring
  • Self-care and lifestyle issues
  • Transition from pediatric to adult care
  • Overcoming discrimination in employment or insurance

Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. They have written, spoken, and advocated about all aspects of survivorship. Importantly, they have also talked to hundreds of survivors, with a wide range of issues and triumphs, and have included many of their stories. Includes medical history record-keeper.

Bow Ties, Butterflies and Band-Aids: A Journey Through Childhood Cancers and Back to Life by Lindsey VanDyke

In Bow Ties, Butterflies and Band-Aids, author Lindsey VanDyke shares what it was like to be diagnosed at the age of eleven, and again at thirteen and twenty-one, with cancer. In her memoir, she directs readers on the journey she, her family and her friends took down dark hospital corridors-and out into the world. She describes what she calls a happy childhood. Here’s the proof, because while her cancer transformed her experience and, ultimately, the direction of her life, it also shaped the woman and survivor she would become. The bulk of the often-playful narrative is the author’s firsthand account, while her mother, father, a host of childhood pals and, later, her fiancée offer vignettes that illustrate their grief, confusion and anger. These stirring anecdotes portray how cancer ultimately affects an entire community, at times shaking it to its foundations. The telltale scars it leaves behind, however, ultimately mark the measure of that community’s happiness and joy.

Children with Cancer: A Comprehensive Reference Guide For Parents by Jeanne Munn Bracken

Written by a reference librarian whose child has survived cancer, this book pulls together a wealth of up-to-date information essential for any layman who wants to help a child or family through this ordeal–including grandparents and other relatives, friends, neighbors, teachers, and clergymen. Doctors, nurses, and other health care professionals will also find the book a valuable resource. Children can and do survive cancer; the last decade has seen enormous strides in treatment. Children with cancer will help patients and their families to be educated consumers–to search out the best care available as well as to live each day under care to the fullest. The information ranges from sophisticated, hard-to-find medical facts to practical tips on how to handle side effects, deal with curious strangers, and much more.

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Did You Know

Building awareness of childhood cancer is critical to funding and finding a cure. To help, please consider sharing on your Facebook.

Today, 46 children will be diagnosed with cancer.  Seven will lose their battle..

Did you know September is National Childhood Cancer Awareness Month!.

Every day in America, approximately 46 children are diagnosed with cancer..

Childhood cancer does not discriminate, sparing no ethnic group, socio-economic class, or geographic region..

Rhabdomyosarcoma is the most common soft tissue sarcoma in children, accounting for about 3% of childhood cancers..

On average, 1 in every 4 elementary schools has a child with cancer. .

About one-third of childhood cancers are leukemias..

Childhood cancer survival rates in the United States have increased from less than 20% in the 1960s to almost 80% today..

Cancer kills more children each year than Asthma, Cystic Fibrosis, Diabetes, and Pediatric AIDS combined. .

Childhood cancer is not one disease entity, but rather a spectrum of different malignancies. Cancers found in children are biologically different from those seen in adults. .

1 in 300 children will develop cancer before age 20. .

Neuroblastoma is the most common extra cranial solid tumor cancer in children. .

Today, up to 75% of the children with cancer can be cured, yet, some forms of childhood cancers have proven so resistant to treatment that, in spite of research, a cure is illusive..

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